Ectrodactyly

Ectrodactyly, also known as split hand or lobster claw hand, is a congenital condition characterized by a deep division or separation in the central portion of the hand, often resembling the claws of a lobster. This condition can vary in severity and may affect one or both hands. At Dr. YV Rao Clinics, we specialize in the diagnosis and treatment of cleft hand, offering personalized care to improve hand function and appearance.

Causes

The exact cause of cleft hand is not fully understood, but it is believed to result from abnormal development of the hand during fetal development. Genetic factors and environmental influences may play a role in the development of this condition.

Symptoms

Symptoms of cleft hand may include

  • Deep division or separation in the central portion of the hand, typically between the middle and ring fingers
  • Abnormal positioning of the fingers, resembling a claw-like appearance(s)
  • Limited function or mobility in the affected hand
  • Aesthetic concerns related to hand appearance

Diagnosis

Diagnosing cleft hand typically involves a physical examination of the hand and may include imaging studies such as X-rays to evaluate the extent of the condition. Our team of specialists will assess hand function, range of motion, and any associated abnormalities to develop an individualized treatment plan.

How Cleft hand Treated?

Treatment for cleft hand depends on the severity of the condition and its impact on hand function and appearance. Our team offers various treatment options, including

Surgical Intervention

  • Pollicization: Surgical procedure to reposition the index finger or other fingers to create a functional thumb, improving hand function and grip strength.
  • Epiphysiodesis: Syndactyly Release: Surgical separation of fused fingers to improve finger mobility and dexterity.
  • Soft Tissue Reconstruction: Surgical techniques to repair and reconstruct soft tissue defects in the hand, enhancing appearance and function.

Physical Therapy

Occupational therapy techniques and exercises to improve hand strength, range of motion, and coordination.

Orthotic Devices

Customized orthotic devices, such as splints or braces, to support the hand, improve alignment, and enhance function.

Recovery and Rehabilitation

Following surgery or other interventions, patients undergo a period of recovery and rehabilitation. Our team provides comprehensive post-operative care, including wound management, pain management, and physical therapy. Rehabilitation aims to optimize function, promote healing, and maximize independence.

Follow-Up Care

Regular follow-up appointments are scheduled to monitor healing, assess progress, and address any concerns or complications. Our team remains accessible to patients and their families, providing ongoing support and guidance throughout the treatment journey.

Why Choose Dr. YV Rao Clinics?

Specialized Expertise: Our team consists of skilled surgeons and therapists with expertise in treating congenital hand anomalies, including cleft hand.

Patient-Centered Care: We prioritize individualized treatment plans tailored to each patient's unique needs and goals.

Comprehensive Support: We offer compassionate care, education, and resources to empower patients and their families throughout the treatment process.

If you or your child is affected by a cleft hand, don't hesitate to reach out to Dr. YV Rao Clinics for expert evaluation and personalized care. We're here to help improve hand function and enhance quality of life.

What is the long-term outlook for children with cleft hands?
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The quality of the reconstruction of your child's fingers depends to a large extent on how severe the original difference was. As a result of surgery, you can expect your child will be able to grasp, pinch, and release objects with their fingers. Their hand should also look better and their fingers should be more aligned.

What syndrome is associated with cleft hand?
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Cleft hand can be associated with several syndromes and genetic conditions, including, Ectrodactyly-ectodermal dysplasia-clefting (EEC) syndrome, Lobster-claw syndrome (also known as Adams-Oliver syndrome), Apert syndrome, Poland syndrome, and Split-hand/foot malformation (SHFM).

Is cleft hand genetic?
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The cause of cleft hand lies, for what is known, partly in genetics. The inheritance of cleft hand is autosomal dominant and has a variable penetrance of 70%.

What is typical and atypical cleft hand?
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In cases of typical cleft hand, the metacarpal or the proximal phalanx on either side of the cleft are longer than on the unaffected side. Conversely, in cases of atypical cleft hand, the hand pattern profile shows a dysplastic bone formation.

Can cleft be prevented?
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You can't always prevent cleft lip and cleft palate in your baby. But there are things you can do to help reduce your baby's chances of having these birth defects: Take folic acid. Before pregnancy, take a multivitamin with 400 micrograms of folic acid in it every day.